Carl hasn't been feeling well, So it's a chilling day and were watching Football!! Carl loves football! We are hopeing in the future carl can attend some sports he loves! Such as Baseball, Football, Wrestling,

Carl's iep meeting went well and Carl has learned a whole bunch of things lately! Wow i am surprised Carl has learned more in the 3 years we have been in this area than when we were at our old school district! Even though Carl is in a big school district they can handle the challenges of Carl daily! Smaller school districts don't have the skills and they don't have the amount of students that would be needed for them to be able to handle kids like him! I am so happy that he has gotten somewhere! He is now on 10 words that he can speak and uses daily! He is so much aware of what's going on around him also!

Check out the video of Carl Dancing!!!! ---> Video

Today is SMS Awareness day! Spreading the word about it! This is my first day for it and i must say it's amazing! :) So happy to be able to bring awareness to a rare syndrome! :) Happy SMS Awareness day! :) 

We loved nan alot! We miss her everyday! She brought so much love and joy to people! It's hard to believe that she has been gone for 3 yrs today! Great Lady that left this world and all of us missing her deeply!  

Doug was a great man! He was great with kids and had an awesome personality! He will be remembered! I remember growing up with Doug! He was always like an uncle to me! He will be missed most definitely! :(  

Also a good friend of mine, her niece died at 15yrs old of liver and lung cancer!! Its been a sad day! :( even though i didn't know her personally i felt a connection to this girl! Yes i felt horrible because she died so young!! Its sad and all! Lexy's fight touched me and i had to blog about this!

Lexy has a page! Just press on her name and it will bring it to her page!
Obituary: 
1997-2013 BROOKLINE, VT- Alexis June "Lexy" Giallella, 15, of Putney Mountain Road died early Tuesday afternoon, November 12, 2013 at Dartmouth-Hitchcock Medical Center in Lebanon, N.H. surrounded by her loving family following a courageous battle with cancer. 

Lexy was born in Brattleboro on December 20, 1997 the daughter of Robert and Cherish (Russ) Giallella. She was raised in Brookline where she attended the Brookline Elementary School, a member of the last class to graduate from the school prior to its closing. She was a member of the Sophomore Class at Leland & Gray High School in Townshend. A gifted athlete, she played both middle school soccer and softball. She loved the outdoors and enjoyed snowmobiling, four wheeling and fishing and hunting with her family. Lexy recently received her Vermont driver's permit and enjoyed driving her Chevy pick-up. Her many other leisure time activities included vacations at Old Orchard Beach, Maine, shopping and time shared with her family, especially her cousins and many friends. She also loved a good party and get-togethers.

Throughout her illness with cancer, she was an inspiration to many with her non stop display of courage and her spirit of optimism. She always fond the shiny side of a rusty nail. Lexy was devoted in her walk of faith and in July was baptized at the Mountain View Seventh Day Adventist Church in Vernon where she attended. 

Survivors include her mother and step-father, Cherish and Randy Clark of Brookline, her father, Robert Giallella of Guilford, one brother, Caleb Giallella of Vernon, two step-sisters, Amelia Clark of Hinsdale and Hillary Clark of Brattleboro, maternal grandparents Richard and Bonnie Thomas of Townshend, paternal grandmother, Betty Porter of Brattleboro, paternal grandfathers, Michael Giallella of Guilford and Ray Porter of Hinsdale. Additionally she leaves many aunts, uncles and cousins, her schoolmates and a large host of friends. Lexy was predeceased by her maternal grandfather, Larry Franklin. 

FUNERAL NOTICE: A memorial service in celebration of her life will be conducted Saturday, November 23rd at 1:00 P.M. at Saint Michael's Catholic Church on Walnut Street with pastor Arthur Miller officiating. A reception will follow the services to be held at the Elk's Home on Putney Road. 

Visiting hours will take place at St. Michael's Church on Friday from 6 to 9 P.M. 

In lieu of flowers memorial contributions in Lexy's name may be made to a special scholarship trust at Leland & Grey High School. Donations can be sent to the Lexy Scholarship Fund, in care of Putney Credit Union, P.O. Box 8366, No. Brattleboro, VT 05304.

We went to an event our city holds every summer and its on the 3rd thursday of the month from June - October! This was the last one and it was trick or treat night! Carl was Sponge Bob and he loved it!
Hope all was safe & Happy Halloween to all! Here is to Thanksgiving coming up next!

We made our way 3hrs to Boston! Neurology here we come! lol So while we were in the neurology office Carl let his true behavioral out! So they have added a med in the form of a patch! We will be waiting to see how this helps Carl! Along with the meds the doctors had decided to let us know that along with the SMS diagnosis carl also had PDD-NOS and Intellectual Disability! I know PDD-NOS is apart of Autism, What Intellectual Disability really is well it's unknown to me! So i guess i got to get researching! 

Carl's diagnosis is here! He has SMS!! I have had to search all there is about it! It's not easy to swallow i will say! It will be a lot of adjustment for our family!